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SDS Events - Global
december 2024
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Global SDS Family Coffee Chat
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Upcoming and Past Events
- Flera datumsön 12 jan.Virtual event12 jan. 2025 15:00 – 17:00Virtual eventMonthly virtual get-together to build community and support.
- sön 20 okt.https://www.sdsalliance.org/sds-pops20 okt. 2024 13:00 – 17:00https://www.sdsalliance.org/sds-popsThe only global, virtual meeting of its kind to provide patients, caregivers, scientists, physicians, and all other stakeholders with an opportunity to connect and discuss all things related to Shwachman-Diamond Syndrome research and advocacy.
- sön 19 majVirtual. Register at sdsalliance.org/cce19 maj 2024 14:00 – 15:00 GMT−4Virtual. Register at sdsalliance.org/cce
- lör 13 apr.free virtual event13 apr. 2024 13:00 – 19:00 GMT−4free virtual eventThis meeting is for patients and families with bone marrow failure disorders and myelodysplastic syndrome, physicians, other health-care workers, fellows, residents and all others who are interested in the field. Children and adult patients are welcome.
- lör 20 majVirtual event20 maj 2023 10:00 – 15:00 GMT−4Virtual eventThe first global, virtual, meeting of its kind to provide patients, caregivers, scientist, physicians, and all other stakeholders access to the latest information on all things Shwachman-Diamond Syndrome.
- tis 18 apr.Robinson College, Cambridge, UK18 apr. 2023 09:00 GMT−4 – 21 apr. 2023 13:00 GMT−4Robinson College, Cambridge, UK, Grange Rd, Cambridge CB3 9AN, UKThis Congress is held every other year in different locations throughout Europe and North America. It is the only scientific congress dedicated to Shwachman-Diamond Syndrome. Due to the global Covid-19 pandemic, the event was postponed several times. Now scheduled for April 18-21, 2023!
- fre 24 marsParis24 mars 2023 09:00 – 16:00 CETParis, Paris, FranceNous vous invitons aux 4e journées des neutropénies qui se tiendront les vendredi 24 et samedi 25 mars prochain.
- lör 30 apr.Virtual30 apr. 2022 12:00 – 18:00 GMT−4VirtualThe National Marrow Failure & Myelodysplasia program at SickKids Canada is pleased to invite you to this interactive meeting. It is an ideal opportunity to learn, network with other families and meet experts in the field.
- lör 24 okt.Virtual run/walk, location of your choice24 okt. 2020 07:00 GMT−4 – 01 nov. 2020 23:00 GMT−5Virtual run/walk, location of your choiceIt's finally here: the first ever virtual global fun run/walk event to support Shwachman-Diamond Syndrome (SDS) research! www.SDSAlliance.org/steps
- sön 12 juliCamp Sunshine, Cosco, ME, USA12 juli 2020 14:00 GMT−4 – 16 juli 2020 10:00 GMT−4Camp Sunshine, Cosco, ME, USA, Cosco, MESDSF (SDS Foundation) hosts a 6-day session at Camp Sunshine every other summer for SDS families to meet with each other and meet and learn from the top SDS experts in North America.
- lör 29 feb.Painting with a Twist, North Andover, MA29 feb. 2020 14:00 – 17:00 GMT−5Painting with a Twist, North Andover, MA, 10 High St, North Andover, MA 01845, USASDS Alliance partnered with Painting with a Twist in North Andover to host a painting event as a fundraiser.
- sön 15 sep.Boston, MA15 sep. 2019 08:00 – 16:00 GMT−4Boston, MA, Harvard Medical School Joseph B Martin Center 77 Avenue Louis Pasteur NRB 133 Boston, MA 02155Celebrating the SDS Registry's 10th anniversary! Please join us for a complimentary day of education, connection, and fun! - Hear updates from the SDS Registry - Learn about exciting research - Discover cutting-edge clinical trials for SDS - Connect with other SDS families
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